With more than a week left before we head to Boston, I decided it was time I started documenting this journey we find ourselves on. So far it has been a hard road with Caleb being in the NICU for the first 2 months of his life because of this black cloud hanging over our head known as Esophageal Atresia. I never even heard of this before Caleb was diagnosed with it on his first day of life, Caleb has a pure Atresia which happens in about 1 and 200,000 births, I am not sure how we got so lucky but I guess we did.
Caleb has been home for a month and it has been wonderful even with ER visits, his g tube came out twice, and then he got sick which was a big no no, I am just glad they didn't feel the need to hospitalize him but it has been a long 2 weeks!
Caleb's surgery will now be on Thursday, Oct 29th. We will be wheeled out just before 7:30 am. Joel and I will be able to walk down with him.
It so strange how I am both SOOOO excited and SOOOOOOOOOO scared at the same time. I completely trust his Doctors I mean it is Boston Children's Hospital it is in the top 2 of Children's Hospitals. I know he is in good hands .
From what I understand the repair happens in 3 stages. The first is the most difficult and the longest. After his first operation he will be completely sedated for 5-7 days while the Doctors stretch his esophagus. He will then go in for the second surgery which is the actual repair! Oh my goodness NO MORE SUCTION! This is the worst part of our day, when he needs to be cleared out, he hates it! The third surgery is to prevent reflux.
So stay tuned. I will be updating frequently as things will probably return to the way they were in the NICU-- cell phone turned off and by the time I leave the hospital it will be too late to talk to anyone.
Prayers will be much appreciated!
Hi Ernestine, Joel, and Caleb! It's Julia. I have been thinking of you. Thank you for keeping us(me) up to date. I REALLY want to know how all of you are doing. Thinking of you, praying for you. XO Julia
ReplyDeleteHi! I hear Caleb is finally feeling better from his cold, I know the little guy (and y'all) don't need any more problems so I'm glad he didn't have to be hospitalized :-) I hope everything goes smoothly in Boston and you will all be in my prayers. Love, Dawn
ReplyDeleteI'm keeping you all in my prayers as you prepare for this BIG step in your lives! I miss you guys terribly!!! Next time I see you he'll be all fixed up! Take care and God Bless!
ReplyDeleteLove,
Amie
That first bath picture is totally PRECIOUS! Not that Grandma is biased :) toward two of her favorite guys!
ReplyDeleteI pray for all of you every day and can't wait to be able to babysit after Caleb gets well! Mom and Dad can go on a well-deserved weekend without baby. He may not like Grandpa giving him a bath, however, since he is so nervous around little ones!
Love to you all and lots of kisses to Caleb! This blog is going to be so cute that it may get an award -- no bragging on Caleb, just stating a fact! :)