Joel Says:
Thanks for the encouragement and prayers. We just got the update that they are in the process of installing the sutures for stretching now. I'm scared to see him after though. He's going to look like something out of The Matrix. He will be on a ventilator, I.V. with three medicine drips, g-tube feed, continuous suction, have a chest drain, tubes coming out of his back and sutures coming out his back wrapped around the tubes. He will of course be drugged insensate and have a muscle relaxer to prevent movement. If he could remember this it would be the most miserable week of his life but at least it is only a week not six months to three years.
In the end I think Ernestine and I will suffer more than he will. This waiting is so hard. The only thing holding us together is the support of the holy spirit. I have not gotten the sinking feeling in my stomach that would indicate something is wrong just the warm feeling that all is well. Without that I would be a complete nervous wreck pacing in circles and generally losing my mind.
Again I want to say thanks for your support and prayers.
Hang in there!! We are praying for you! Glad to hear he did so well with the first part. What a strong boy he is!!
ReplyDeleteIt doesn't matter what he looks like. It has to be done and you have found the best place and the most experienced team to work on him. Hold on to your faith, give him your love, talk to him. I am praying for you all! I have faith that you and Ernestine are strong enough to handle this. It is OK to take some adjustment time to let it sink in as to how he looks. If you need to leave the area a few minutes to adjust, it's OK. What's important is that you stay strong and know that he's going to be OK and he's not in pain! My Grandbaby will get well fast - he is a strong little baby and a lot of prayers are going out today for him.
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