Caleb continues to do well. He keeps breaking through his sedation. Last night he was awake doe about 30 minutes until he got a little bit agitated so his nurse had to give him a bolus. His eyes were open wide, they were a bit confused but as he looked at me I knew he wanted to be held so I stood up and wrapped my airs around him to give him the sensation even though I could not truly hold him.
He has had 2 greats days in a row so they think the antibiotics are finally killing off the pneumonia. They decided to wait until tomorrow the stop the paralytic and I am just find with that. He may have a leak around his anostamosis(sp) but surgeons don't seem to be too worried. They said these primary repairs often have leaks and they should heal on its own.
Friday Caleb is suppose to go in for a dilation and his fundo but it may have to put off for a few days because of the pneumonia. I get to finally hold him this week after 4 weeks so I am SO HAPPY.
But sadly some babies aren't doing as well as Caleb and baby Bryce died yesterday. It was absolutely horrible, I could not imagine losing Caleb. Donna and Demosio are doing well and I hope that you will add your prayers with ours as they go through this very tough time. It is hard getting close other parents and then have the outcome be not good.
Donovan is doing well. They started waking him up yesterday, such a cutie he is. Gracen has a surgery date of December 15, I know his parents are very relieved. I am not sure where they get their patience from, they have been waiting so long and I am so happy their day is finally coming! GO GRACEN!!!!!!!!!!!!!!
Joel gets back on Wednesday and I CANNOT WAIT!
I hope everyone is doing well. Though we are consumed by what is going on with Caleb, our thoughts and prayers are with you!
Ernestine and Caleb
Heh. I love you guys. You might need to bump me up to admin so I can edit your posts. You must have been tired. Typo city. :)
ReplyDeleteI'm glad he is doing well. I'm sad about the leak I'm sure it is going to delay things. :( I guess we are going to spend New Years as well as Christmas in Boston after all.
Squeeze him for me when you finally get to hold him. I am so sad for the other family. I can't imagine their loss. I will add them to my prayers.
ReplyDeleteSo glad our little man is doing well. He is so adorable, even with all the tubing. I am glad you will get to hold him - I know that has been so hard. He will love all the attention when you get hold of him, but the nurses might have to monitor too many kisses :) I know they would have to PULL me off him if I were there and allowed to love on him! Maybe I can come see him around Christmas. Keep on doing what you do so well -- taking care of Caleb! I will keep on praying for continued good results and growth for Caleb. Take care of yourself, too!
ReplyDeleteHello hello! We went to PA for Thanksgiving and my 10 year high school reunion, then back Sat. for Dave's 10 year reunion. Crazy that they were both this weekend, huh? We were thinking of you the whole time, and hoping your Thanksgiving was a good one. I'm glad to see the updates.
ReplyDeleteIt is nice to read your updates.... sorry I don't comment more! I am always thinking of you three in our prayers and pray that Caleb makes a full recover, whenever that may be. It was great to have Joel for dinner last night... catch up and have a good friend to spend time with. When you all come home we'll have to invite you all over! I'm so happy you got to hold Caleb... Joel showed me the picture and you can see the pure joy on both of your faces! I love you all and pray for your safety! Next time you hold Caleb give him a smooch for me on those cute chubby cheeks!!!
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