Well we finally spoke with Dr Jennings and he explained to us that they will have to stick with the Friday surgical date as Dr Foker and his radiologist are not available till Thursday and Friday. They need the radiologist to do a special study to ensure the lining of the esophagus overlaps not just the outside, that gets done Thursday. On Friday Dr Foker is available to assist in the attachment surgery. They want him to come as he has developed a new technique for attachment with less scarring. So we will have to keep Caleb under sedation till Friday. We are a bit distressed at the additional delay but since it looks like this really is the best choice we are practicing patience.
Caleb's nurse told us she was manually suctioning his pouch today and reached the end of her 17cm tube without hitting the bottom of his pouch. It was 14cm, maybe a bit less, from his nose to the bottom. He's growing like a champ. The poor guy is so puffy now it's hard for us to see him like that, but the nurses tell us it doesn't hurt him and he'll work the puffy out in a couple days after he is allowed to be active.
So in brief Caleb will not get surgery till Friday and mom and dad are trying desperately to endure.
Keep on praying and doing the best you can for Caleb. The end is in sight and it sounds like they are doing what is best and taking care of the inner lining. Today is Tuesday. Thursday the inner lining will be checked and everything will be a go for Friday. I know waiting is the hardest thing to do but it's what has to be done. My heart and prayers are with you.
ReplyDeleteI can't imagine how hard it is for you now. Hang in there. I'll say an extra prayer for you today. He has done so well so far. I am grateful that he has both of you there for him. Be strong. Soon the worst will be over:)
ReplyDeleteI agree with all that has been offered in the way of comments. All I can add is that we love you guys!
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